Camp Ellellbee

A Family Camp for Households Navigating Life with Skeletal Dysplasia
Camp Ellellbee isn’t just a weekend away, it’s a weekend that brings us home. Designed for individuals living with skeletal dysplasia and their families, this free, all inclusive program is more than just a getaway, it’s a chance to connect, recharge, and be part of a growing, resilient community.

Created by the Little Legs Big Heart Foundation, presented by GutMonkey, and sponsored by BioMarin, Camp Ellellbee exists to support families navigating life with skeletal dysplasia…together.

What You Can Expect
Each camp takes place at a peaceful, family-friendly outdoor location (Please see the map and list of general locations below). We keep things relaxed, playful, and supportive by creating space for both adventure and downtime.

Your weekend will include:
Facilitated activities/breakout sessions
Breakout sessions, family games, and time to explore outside
Simple, cozy cabins with bunk beds
All meals provided (dietary needs welcome)
Shared stories, laughter, and real connection

Who Can Join
Camp Ellellbee is for households where at least one immediate family member lives with any form of skeletal dysplasia.

That includes:
Children and their parent(s) or legal guardian(s)
Primary caregivers (like grandparents) who live in the same household

Extended family members who don’t live in the same home aren’t eligible unless special circumstances apply. If you’re unsure, reach out – we’re happy to talk it through.

If you have any questions, feel free to reach out at camps@gutmonkey.com