Fragile X Syndrome (FXS) is a genetic condition that causes someone to not produce adequate amounts of a protein called FMRP that is needed for brain development. This syndrome can affect both boys and girls however girls' symptoms are usually milder. People with FXS can have developmental delays, learning difficulties, and social or behavioral problems. […]
The Americans with Disabilities Act (ADA) was signed into law on this date in 1990. "The ADA is a civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general public." The law ensures […]
August is a great time to learn how to protect your child's eyesight. One in 20 children have an eyesight condition that can result in permanent vision loss if left untreated. Even so, 80% of preschoolers do not have their eyes routinely screened. It is important to remember that vision changes can occur without children […]
Spinal Muscular Atrophy is a neurodegenerative condition that is hereditary and is caused by a deficiency of the motor neuron protein SMN which affects the motor nerve cells in the spinal cord, causing problems with eating, breathing, crawling, walking. August is the time when we try to raise awareness, share resources, and educate the community […]
The SB Education Day team is putting on another event for the Spina Bifida community. This session will be on zoom and will have the following topics: - Accessibility and wheelchair friendly places in Colorado - Learning about kidney stones - An interactive surprise game to have some fun! Please RSVP at the google form here: […]
While childhood cancer is rare, it is the leading cause of disease-related death past infancy in children and adolescents. Every September, advocacy organizations, healthcare institutions, patients, and families raise awareness for childhood cancer.
