Feeding Tube Awareness Week is a time to increase awareness over why people need tube feedings, share with the greater population about the challenges surrounding being tube fed, and celebrate a medical advancement that has allowed so many to live and thrive.

Angelman Syndrome is a disorder on the maternal UBE3A gene in the 15th chromosome. It is rare and often diagnosed early in childhood with symptoms such as poor balance, delayed walking, gastrointestinal issues, and seizures. Despite their difficulties, people with Angelman Syndrome are generally happy and are frequently found smiling and laughing.

Angelman Syndrome (AS) is a rare chromosomal condition that affects about 500,000 world wide. It causes developmental delays that can begin by 6-12 months old. Despite possible issues with balance, digestion, seizures, and speech people with AS are generally very happy and social. Today we celebrate every person with AS and celebrate the joy they […]

Rare Diseases are defined as those that affect less than 2,000 people worldwide. Rare Disease Day gives people an opportunity to increase awareness by joining with others who are not very commonly known. For a bit more information, check out our blog post and find ways to make a difference.

Serious birth defects will affect 3-6% of infants born worldwide and 1 in every 33 babies born in the US. A birth defect is a structural change to any body part that may be found before, at or after birth (usually within the first year. Having an awareness of what can happen and why gives […]