Schizencephaly is an extremely rare condition that is found at birth and is characterized by slits in certain parts of the brain. Due to these changes, babies with schizencephaly often have developmental delays, cognitive delays, along with speech and language delays. They can struggle with seizures and may require medications in addition to a shunt. […]
Cytomegalovirus (CMV) is a virus that can affect anyone and is the most common infectious cause of birth defects. One in three children in the US have CMV which can stay there for life and reactivate at any time. Most people with CMV have no symptoms and are unaware they have been infected. CMV causes […]
Aphasia is caused by a brain injury and causes a person to loose the ability to produce or understand words, this can affect speech, reading, and writing. Aphasia can affect someone in a wide variety of ways. Two million people in America have it but studies show about 84% of people have never heard of […]
Now in its 10th year, the annual Autism Resource Fair is a favorite Colorado autism community tradition. Nowhere else do so many families and individuals on the spectrum come together with the sole purpose of gathering resources and connecting with providers. The Autism Resource Fair addresses the most fundamental challenges of the autism community: Autism […]
DeafBlind Awareness Week was established in 1984 and is always celebrated the last week of June in honor of Helen Keller's birthday on June 27th. Deafblindness is a combination of sight and hearing loss that affects a person's ability to communicate with others, access their environment, or acquire information. It can also be called dual […]
July is a time to learn more about clefts of the lip and palate. Approximately 2600 babies are born with cleft palate in the United States every each. Another 4400 babies are born with cleft lip, with or without cleft palate annually. These issues can cause difficulties with eating, speaking, and hearing along with social […]
Fragile X Syndrome (FXS) is a genetic condition that causes someone to not produce adequate amounts of a protein called FMRP that is needed for brain development. This syndrome can affect both boys and girls however girls' symptoms are usually milder. People with FXS can have developmental delays, learning difficulties, and social or behavioral problems. […]
The Americans with Disabilities Act (ADA) was signed into law on this date in 1990. "The ADA is a civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general public." The law ensures […]
August is a great time to learn how to protect your child's eyesight. One in 20 children have an eyesight condition that can result in permanent vision loss if left untreated. Even so, 80% of preschoolers do not have their eyes routinely screened. It is important to remember that vision changes can occur without children […]
Spinal Muscular Atrophy is a neurodegenerative condition that is hereditary and is caused by a deficiency of the motor neuron protein SMN which affects the motor nerve cells in the spinal cord, causing problems with eating, breathing, crawling, walking. August is the time when we try to raise awareness, share resources, and educate the community […]
The SB Education Day team is putting on another event for the Spina Bifida community. This session will be on zoom and will have the following topics: - Accessibility and wheelchair friendly places in Colorado - Learning about kidney stones - An interactive surprise game to have some fun! Please RSVP at the google form here: […]
