July is a time to learn more about clefts of the lip and palate. Approximately 2600 babies are born with cleft palate in the United States every each. Another 4400 babies are born with cleft lip, with or without cleft palate annually. These issues can cause difficulties with eating, speaking, and hearing along with social […]
Fragile X Syndrome (FXS) is a genetic condition that causes someone to not produce adequate amounts of a protein called FMRP that is needed for brain development. This syndrome can affect both boys and girls however girls' symptoms are usually milder. People with FXS can have developmental delays, learning difficulties, and social or behavioral problems. […]
The Americans with Disabilities Act (ADA) was signed into law on this date in 1990. "The ADA is a civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general public." The law ensures […]
Spinal Muscular Atrophy is a neurodegenerative condition that is hereditary and is caused by a deficiency of the motor neuron protein SMN which affects the motor nerve cells in the spinal cord, causing problems with eating, breathing, crawling, walking. August is the time when we try to raise awareness, share resources, and educate the community […]
While childhood cancer is rare, it is the leading cause of disease-related death past infancy in children and adolescents. Every September, advocacy organizations, healthcare institutions, patients, and families raise awareness for childhood cancer.
One in 5000 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organizations in their countries, and all of them work day by day to guarantee access […]
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Alcohol is now recognized as the leading preventable cause of birth defects and developmental disorders in the United States. Each year thousands of children are born with life-long disabilities because they were exposed to alcohol prenatally. On September 9th, the National Institute on Alcohol Abuse and Alcoholism recognizes International Fetal Alcohol Spectrum Disorders (FASD) Awareness […]
International Week of the Deaf is celebrated by the World Federation of the Deaf (WFD) and its national associations and their affiliates globally during the last full week of September (Monday through Sunday), culminating with International Day of the Deaf on the last Sunday of the week.
The International Day of Sign Languages is a unique opportunity to support and protect the linguistic identity and cultural diversity of all deaf people and other sign language users. During the 2022 celebration of the International Day of Sign Languages, the world will once again highlight the unity generated by our sign languages. Deaf communities, governments and […]
7:00 a.m. Registration & Continental Breakfast (Free for registered walkers) Team Village Opens 8:00 a.m. Festivities Begin 9:00 a.m. Step up for Down Syndrome Walk Begins (1 or 2 mile loop) 10:00-12:00 p.m. Live Performance by Midnight Vinyl Face Painting, Games, Crafts and much more! Team Awards
A very special program with a Mom of a child with CMV.....parents and professionals are welcome.
