National Cleft and Craniofacial Awareness and Prevention Month
July is a time to learn more about clefts of the lip and palate. Approximately 2600 babies are born with cleft palate in the United States every each. Another 4400 […]
July is a time to learn more about clefts of the lip and palate. Approximately 2600 babies are born with cleft palate in the United States every each. Another 4400 […]
Fragile X Syndrome (FXS) is a genetic condition that causes someone to not produce adequate amounts of a protein called FMRP that is needed for brain development. This syndrome can […]
The Americans with Disabilities Act (ADA) was signed into law on this date in 1990. "The ADA is a civil rights law that prohibits discrimination against individuals with disabilities in […]
Spinal Muscular Atrophy is a neurodegenerative condition that is hereditary and is caused by a deficiency of the motor neuron protein SMN which affects the motor nerve cells in the […]
While childhood cancer is rare, it is the leading cause of disease-related death past infancy in children and adolescents. Every September, advocacy organizations, healthcare institutions, patients, and families raise awareness for […]
One in 5000 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group, but the 250.000 patients around the globe […]
Register for this event at tinyurl.com/2022eventscohv
Alcohol is now recognized as the leading preventable cause of birth defects and developmental disorders in the United States. Each year thousands of children are born with life-long disabilities because […]
International Week of the Deaf is celebrated by the World Federation of the Deaf (WFD) and its national associations and their affiliates globally during the last full week of September […]
The International Day of Sign Languages is a unique opportunity to support and protect the linguistic identity and cultural diversity of all deaf people and other sign language users. During the 2022 […]
7:00 a.m. Registration & Continental Breakfast (Free for registered walkers) Team Village Opens 8:00 a.m. Festivities Begin 9:00 a.m. Step up for Down Syndrome Walk Begins (1 or 2 mile loop) 10:00-12:00 p.m. Live Performance […]
A very special program with a Mom of a child with CMV.....parents and professionals are welcome.