Spinal Muscular Atrophy is a neurodegenerative condition that is hereditary and is caused by a deficiency of the motor neuron protein SMN which affects the motor nerve cells in the spinal cord, causing problems with eating, breathing, crawling, walking. August is the time when we try to raise awareness, share resources, and educate the community […]
One in 5000 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organizations in their countries, and all of them work day by day to guarantee access […]
International Week of the Deaf is celebrated by the World Federation of the Deaf (WFD) and its national associations and their affiliates globally during the last full week of September (Monday through Sunday), culminating with International Day of the Deaf on the last Sunday of the week.
The International Day of Sign Languages is a unique opportunity to support and protect the linguistic identity and cultural diversity of all deaf people and other sign language users. During the 2022 celebration of the International Day of Sign Languages, the world will once again highlight the unity generated by our sign languages. Deaf communities, governments and […]
7:00 a.m. Registration & Continental Breakfast (Free for registered walkers) Team Village Opens 8:00 a.m. Festivities Begin 9:00 a.m. Step up for Down Syndrome Walk Begins (1 or 2 mile loop) 10:00-12:00 p.m. Live Performance by Midnight Vinyl Face Painting, Games, Crafts and much more! Team Awards
A very special program with a Mom of a child with CMV.....parents and professionals are welcome.
In October, Americans observe National Disability Employment Awareness Month by paying tribute to the accomplishments of the men and women with disabilities whose work helps keep the nation’s economy strong and by reaffirming their commitment to ensure equal opportunity for all citizens. This effort to educate the public about the issues related to disability and […]
In October and beyond, infant caregivers and service/healthcare providers can join Safe to Sleep® and its partners to encourage safe infant sleep and help raise awareness about ways to reduce the risk of SIDS. Despite decreases in rates of SIDS and other sleep-related infant deaths, more than one-third of sudden unexpected infant deaths that occur […]
Down syndrome is one of the most common types of intellectual disabilities. So it’s no surprise that each year in October we recognize Down Syndrome Awareness Month to raise public awareness about the condition, and advocate for acceptance and inclusion of people with Down syndrome. People with Down syndrome still face stereotypes and myths, but […]
Questions? Please email us at GBYS@co-hv.org Please RSVP to tinyurl.com/2022EVENTSCOHV